Changemaker Profile


I was diagnosed with sickle cell at the age of 3. Growing up, I was constantly in and out of hospital, whether it be for an admission or appointment. Each visit required an in-depth explanation of my condition, crisis and treatment. The repetition began to get frustrating – no matter the hospital or urgency of the crisis, the explanation was always the same.

Years later, I was diagnosed with Gamma-delta hepatosplenic lymphoma, a type of blood cancer. My specialist nurse talked me through everything from financial care, social care, mental health care, information sessions, treatment and contact details if I needed further assistance. I had never felt so connected – physically and emotionally – to anyone in the healthcare industry until that moment.

My cancer journey introduced me to a wellbeing standard I was unaware is possible during my sickle cell journey. A whole village came together for my lymphoma journey, and I wish this same village was present in my sickle cell days. My sickle cell affected me for much longer and had a long-lasting effect. Believing you have a true support system with a thought-out care coordination plan can positively impact many lives.

This campaign isn’t just about us – it’s about you. If you live with, or care for someone with a rare disease, share your experience on social media using the hashtag. Help us be heard.

You are about to leave the I am number 17 campaign website.

Do you wish to proceed?

Yes No

Takeda makes no representation as to the accuracy of the information contained on sites we do not own or control. Takeda does not recommend and does not endorse the content on any third party websites. Your use of third party websites is at your own risk and subject to the terms and conditions of use for such sites.