Changemaker Profile


For as long as I can remember, I have lived with haemophilia A, a rare bleeding disorder which means I have no factor VIII in my body to help with internal blood clotting. When I was little, I had a lot of bleeds into my elbow, knee and ankle joints, which are badly damaged as a result. This didn’t stop me from doing the sports I wanted to.

After taking up swimming at the age of four, I never dreamed that I’d end up representing Team GB at the London 2012 and that it would be the best experience of my life, one that I will always be grateful for.

I came fourth in the 100m Breaststroke and broke 3 British records – 50m Breaststroke, 100m Breaststroke and as part of the 4x100m medley relay team (twice in one day!). It was the most amazing moment to share with my teammates and my family who were with me every step of the way. London 2012 gave me the opportunity to go out into the world and speak about what life was like being a professional athlete and someone who lives with severe haemophilia A.

Launch Art Exhibition

I am number 17 launched in January 2020 with an art exhibition at the Oxo Gallery, showcasing each changemakers experience. Each changemaker was paired with an artist to create a bespoke piece of artwork, ranging from paintings, photography to physical installation. Below you will find information on the artwork created and the artists profile.


Jack is an exceptional human that despite having limitations on his body, has accomplished more than most, overcoming both mental and physical barriers. I wanted to reflect the importance of swimming in shaping Jacks life, past, present and future through a blue palette, water droplets and sense of movement. Living with haemophilia A, Jack had to learn the limits of his body at a young age. Vertical lines highlight these anatomical boundaries but also points of pain that Jack needs to continually manage.

Artist Profile

Rosie Woods

Rosie is a street and studio artist from London. Rosie has left her mark across the globe with spray-paints and brushes. Whether scaling huge walls or working on more refined canvas’ she focuses on texture, colour and movement.

“I’m particularly interested in this brief having lost my father to an extremely rare disease, an antibody found in his system called Anti-Hue. Sadly my mother has also been diagnosed with a rare brain tumour this year. Despite this, I hope my work comes across as uplifting.”


This campaign isn’t just about us – it’s about you. If you live with, or care for someone with a rare disease, share your experience on social media using the hashtag. Help us be heard.

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