Stronger Together

Lara and Rachel’s video interview part 2 – Living with Ehlers-Danlos syndrome, COVID-19 and advocacy efforts


This week, changemakers Lara and Rachel met to continue their conversation about their experiences of living with the rare disease Ehlers-Danlos syndrome (EDS). As well as, sharing their experiences of COIVD-19 and their recent advocacy efforts to help increase awareness of rare disease and EDS.

EDS are a group of conditions that cause very flexible joints and stretchy and fragile skin. Common symptoms of EDS include unusually flexible joints and skin that stretches and break easily. EDS are often inherited from your parents.

Below you will find part 2 of their conversation. Check out Rachel’s Stronger Together page for part 1 of their chat, where they discuss living with EDS and their diagnostic odyssey.

You can read Lara’s full experience here.

This campaign isn’t just about us – it’s about you. If you live with, or care for someone with a rare disease, share your experience on social media using the hashtag. Help us be heard.

You are about to leave the I am number 17 campaign website.

Do you wish to proceed?

Yes No

Takeda makes no representation as to the accuracy of the information contained on sites we do not own or control. Takeda does not recommend and does not endorse the content on any third party websites. Your use of third party websites is at your own risk and subject to the terms and conditions of use for such sites.